This website is about our family and dealing with a rare
disorder - a late infantile form of the NCL disease sometimes
known as Batten's.
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Find out how you can help ... and make a difference!
Project Possibility is Underway!
You may be aware that Project Possibility refers not only to Colton’s trip to India (June 2008) for a leading edge Stem Cell brain surgery… but also the regeneration phase (3-4 years) after his surgery .
Last May/June Colton’s team traveled to Bangalore, where Colton became the first Late Infantile NCL child to receive the mesenchymal stem cell therapy. 68 million stem cells were stereotactically implanted into 6 locations in his brain. Huge thanks to Maria Leslie who was Colton’s donor!!
The surgery was done at BGS Global Hospital, under Dr. N.K. Venkatramana’s most capable team. The experience was particularly powerful as the BGS Hospital staff understood our approach to Colton’s care, and two of Colton’s regular practitioners – Kathy Winter, Naturopathic Doctor and Sandi Loytomaki – Quantum Healer, who traveled to India with us were able to be present and involved throughout the entire process. It was amazing!
We were in India three weeks, and during the phase when Colton was regaining his strength to travel home, got to experience a bit of the local culture. Riding on the elephants was the definite highlight!
How is He Doing?
Colton is doing well. The combination of his successful surgery, and his ongoing treatments with his Canadian hands-on practitioners have seen Colton achieve some exciting milestones: Moving his arms when he stretches. Weight bearing on his legs. Holding his own head up (first time in over 3 years!), and a very obvious alertness he didn’t have before. Colton looks great and has grown 5 inches in the past 15 months!
What’s Next?
We are not racing into any other surgeries in the short term. We are focusing on following Colton’s lead with his highly skilled team, and dedicating the time and resources to supporting all his functions at the highest level possible: Continuing his very extensive naturopathic regime; Stepping up his physio (including hiring a nanny who has a physio background, for day to day exercises); Installing a ceiling tracking system that will be used for both lifting/transfers (he’s getting heavier too!), and for exercises/ walking stimulation; Following the path outlined in weekly sessions with his Quantum Healer; Continued bi-weekly chiropractic and monthly Osteopathy.
. . . . .
What is Project Possibility?
Project Possibility involves a leading edge
stem cell procedure for Colton last year in India, as well as the following years of his
re-generative therapy.
Fundraising for Project Possibility will also
help underprivileged children in India who
require much less complex medical help than Colton did to
generate possibility for their own healthy
futures.
Want to Support Colton?
Colton is on an amazing journey in his regenerative path to health… it is also a very comprehensive and expensive one.
Our thanks to all who participated in the last fundraiser. We will list the next one here when a date is picked and we all hope to see you again.
Meanwhile, if you would like to make a donation online (no tax receipt) click here. Your contribution would be most appreciated, and put to excellent use for Colton’s health.
