This website is about our family and dealing with a rare
disorder - a late infantile form of the NCL disease sometimes
known as Batten's.
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Find out how you can help ... and make a difference!
Project Possibility is Underway!
You may be aware that Project Possibility refers not only to Colton’s trip to India (June 2008) for a leading edge Stem Cell brain surgery… but also the regeneration phase (3-4 years) after his surgery .
Last May/June Colton’s team traveled to Bangalore, where Colton became the first Late Infantile NCL child to receive the mesenchymal stem cell therapy. 68 million stem cells were stereotactically implanted into 6 locations in his brain. Huge thanks to Maria Leslie who was Colton’s donor!!
The surgery was done at BGS Global Hospital, under Dr. N.K. Venkatramana’s most capable team. The experience was particularly powerful as the BGS Hospital staff understood our approach to Colton’s care, and two of Colton’s regular practitioners – Kathy Winter, Naturopathic Doctor and Sandi Loytomaki – Quantum Healer, who traveled to India with us were able to be present and involved throughout the entire process. It was amazing!
We were in India three weeks, and during the phase when Colton was regaining his strength to travel home, got to experience a bit of the local culture. Riding on the elephants was the definite highlight!
How is He Doing?
Colton is doing well. The combination of his successful surgery, and his ongoing treatments with his Canadian hands-on practitioners have seen Colton achieve some exciting milestones: Moving his arms when he stretches. Weight bearing on his legs. Holding his own head up (first time in over 3 years!), and a very obvious alertness he didn’t have before. Colton looks great and has grown 5 inches in the past 15 months!
What’s Next?
We are not racing into any other surgeries in the short term. We are focusing on following Colton’s lead with his highly skilled team, and dedicating the time and resources to supporting all his functions at the highest level possible: Continuing his very extensive naturopathic regime; Stepping up his physio (including hiring a nanny who has a physio background, for day to day exercises); Installing a ceiling tracking system that will be used for both lifting/transfers (he’s getting heavier too!), and for exercises/ walking stimulation; Following the path outlined in weekly sessions with his Quantum Healer; Continued bi-weekly chiropractic and monthly Osteopathy.
. . . . .
What is Project Possibility?
Project Possibility involves a leading edge
stem cell procedure for Colton last year in India, as well as the following years of his
re-generative therapy.
Fundraising for Project Possibility will also
help underprivileged children in India who
require much less complex medical help than Colton did to
generate possibility for their own healthy
futures.
Want to Support Colton?
Colton is on an amazing journey in his regenerative path to health… it is also a very comprehensive and expensive one. A fundraising dance is planned for November 6th in Burlington (ON) which you can attend, or support with a donation. For full details or to print out a flier to post and help us promote this event… click here.
To buy online tickets to this event, you can use our regular donations link. Tickets are $25 per person, or $200 for a table of either 8 or 9 (advance only for tables). Tickets at the door are $30.
If the donation is made prior to Nov 5th, you will be contacted by email within 24 hours, to confirm if it is for ticket(s), and if you plan to attend / names of those attending with you. Your email confirmation/receipt and bank statement will show a donation to Ride in My Footsteps (Carling’s Project). All funds from ticket sales will be transferred to the Winning Team for use with Colton's Project Possibility. Your physical ticket (for door prizes etc.) can be picked up at the door by showing your online donation receipt.
If you are interested in selling tickets for this event at your place of work, please contact Janice at phoenixrising@cogeco.ca.
We hope to see you out on Friday Nov 6th. It will be a fun night. Special thanks to Jamie Myers and team at Jake’s Grill and Oyster Bar (Burlington) for donating the light refreshments!
Lastly, but not least….we continue to appreciate all those companies and
people who donated generously to help us get to India. Thank You!!!